As I look back at the last several years, I can identify many symptoms. It's amazing how your body adjusts and gets accustomed changes. I can remember before we had Millie, our youngest who is now 2, some signs of this disease now that I reflect on it all.
June 2013 is when I really started noticing changes that needed attention. While I was pregnant with Millie I started taking medication for my thyroid and I assumed that what I was experiencing was due to that. So, all summer we were changing doses. I was giving that little thyroid way too much credit!! In December when my levels were at normal and I still didn't feel well I realized that something more was going on.
My
biggest complaint was extreme
fatigue. People would say, "well,
you have 4 energetic children and a busy husband!"
Yes I do, and yes their energy is exhausting. However I think most Mom's can get off the couch and accomplish something during the day, I couldn't. I would sit down at 11 to help Ike with his homework and I honestly struggled to get up before Clark got home from work at 5! If I accomplished one task during the day I felt pretty good about myself. This was so unlike me. I love to check things off lists, spend time with my kids and exercise!
I remember Clark and I attended the Beautiful Brigham City Temple in December. I prayed while there that I would be able to realize if my symptoms were severe enough that I needed to see the doctor. I didn't want to show up and have him just tell me that I was tired because I had 4 kids, that I was lazy or depressed.
In
December because the weather turned cold I started to do my jogs on the treadmill. One morning I was seriously struggling. I could not even go one min. without having to turn off the machine and take a long breather! I was hurting! I am not a runner by any means, but I had been jogging 3 miles almost every day till now so this was not just a case of being out of shape. Within a week other symptoms surfaced and I was convinced that I needed to see the doctor.
I started charting my heart rate which at resting was consistently
120bpm! This was alarming to me most of all.
Nightly I would
fever and have an ear ache.
Night Sweats
Persistant Cough
Unexplainable weight loss
Light headed and dizzy, out of breath frequently
Before I even arrived home from my first appointment the doctor called with results from a blood test. While in his office we explored the idea of a heart condition, however the blood work showed severe
Anemia. I don't know what all these numbers mean, but my numbers were at a 26 and were supposed to be around 45!
We did a month of iron treatments and B12 vitamins to find the next month my levels had dropped to 25! How could that be when I was taking iron supplements? This is when the exploration began.
We decided to do a blood transfusion. So grateful for people able and willing to donate their blood! This was followed by other tests, ultrasounds, biopsy's, etc. Each test, each doctors visit came back inconclusive. How could I be loosing so much blood and have no idea where? One doctor we visited made a suggestion of seeing a blood specialist. It just all sounded too strange. This is when Clark and I started considering that this could be cancer.
February 14, Valentines Day
I woke up early, made heart shaped waffle toast for the family, got everyone out the door for school and work and decided to hit the shower. That is where I discovered a huge lump on my neck. Never noticed it before, didn't hurt. I immediately called my sister, who is a Pharmacist. She told me to put heat on it and see if it would go down. I did that all weekend, to no avail. Again, giving that thyroid way too much credit, I figured it had something to do with that.
February 17, Presidents Day
Visited my doctor who thankfully didn't dismiss it as an infection and put me on antibiotics. He was very proactive and had me scheduled for a CT scan that afternoon. He called that evening with results and wanted Clark and I to come back to the office. I think by this point we knew what was happening. It's never a good thing when the doctor is waiting in the lobby for you. Thankfully my parents called and were on their way up for dinner.
"Characteristic of Lymphoma" is what the doctor said. He had us scheduled with a doctor in Ogden for the morning.
I had already been to the doctor so often that the kids started discussing who was to receive the next pair of "stylish" hospital slippers!
The next two weeks were crazy, busy with tests, biopsies, port placements, doctors appointments and more tests. The PET scan came back indicating that the cancer had progressed further than originally thought. At my first oncologist visit they were thinking stage 2B, however the final diagnosis was Hodgkins Lymphoma stage 3B meaning the cancer had progressed passed the diaphragm but not into another organ yet. I think that diagnosis was harder and more upsetting for me than the original. Thankfully I have a wonderfully calm, confident and optimistic Oncologist and he was able to calm me down.
Within 2 weeks we started Chemo Therapy. We were so anxious to start getting rid of this progressing cancer.
I receive a treatment every other Thursday. I am scheduled for 12 treatments, which will put me finishing up around the middle of August if all continues to go well. There are about 5 bags of medicine and about the same number of shots. It takes about 4 hours to complete.
Treatment day is actually very fun! I get to go hang out with people I love for a few hours. We eat good food, visit, play games, watch movies. It's great! Too bad it takes a cancer diagnosis to get me to spend this kind of time with family and friends!!
I usually leave feeling light headed, have a head ache and my face burns! Grateful for a ride home!
The following day I go back to Ogden to get a shot that boosts my immune system. I think this is what troubles me more than the chemo. My bones and muscles just ache for days after this shot. It's like I just ran a marathon and every muscle just hurts to even look at! I had no idea that eye lids and tongues could ache like that!
After a few days of aches my life is beautiful! I honestly can say that I feel better than I have in years! I am not tired, I sleep well, I can eat and exercise and somewhat keep up with the kids. It is incredible! These days between treatments are what help me know that what we are doing is working. I feel so hopeful and blessed.
It has been amazing to me how supportive our ward, friends, family and strangers have been. I had no idea how many people cared! It has been so good for our kids to see the many ways that people can serve. It's because of these people who come to help me clean, come to watch my kids, cook for us, carpool, etc...that I am able to take the time I need to recover between treatments. So grateful to my Heavenly Father for the goodness of His children.
Yes, I lost my hair. This is a subject that deserves more than a small blurb, but I'll just say...it was not nearly as traumatic as I thought it would be. You can cover your head with a hat or scarf, but what about those eye brows and eyelashes?! So thankful we haven't had to cross that road yet!
A BIG THANKS to the many many people supporting our family during this time. Words can not adequately express how grateful we are. A burden is truly being lifted through you. Not a day has gone by when someone has not dropped in, called or sent a note. It's amazing what a thought can do to lift someones spirits.